Community Science, Fueled by Your Personal Data

Image: Open Humans sketch. All images courtesy Open Humans

Cite as: DOI

10.25815/4gdw-cv05

Citation format: The Chicago Manual of Style, 17th Edition

Greshake Tzovaras, Bastian. ‘Community Science, Fueled by Your Personal Data’, 2019. https://doi.org/10.25815/4gdw-cv05.

Science, research, and society are missing out on the wealth of personal data being generated from the likes of fitness and health monitoring, and genetics because of poor regulatory framework to support user orientated and privacy driven data policies — AKA data sovereignty! Open Humans offers a working platform and data storage inside a standardized ecosystem that puts the users in control of their data and protects privacy.

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Welcome to Post-Digital Community Science!

Image: Copyright Marochkina | Dreamstime.com https://www.dreamstime.com/marochkina_info

A Generation Research theme: April/May 2019

Invitation to contribute!

The theme will start in mid April 2019 and over the course of six weeks GenR will look to offer up examples of cutting edge work in the field from across Europe.

If you would like to make a contribution please drop the editor-in-chief Simon Worthington a line at simon@genr.eu or DM @gen_r_ on Twitter.

In this Generation Research theme the idea is to look at how the general public can participate in the research process and the creation of knowledge as Community Science and how this is reinvigorating a culture of scholarship and science in society at large.

Citizen Science is booming around the world but the degree to which it is open varies greatly, as does formal support for Citizen Science across disciplines, organizations and countries.


‘LIBER Open Science Roadmap’ (Ayris et al. 2018)
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Illuminating Dark Knowledge



How innovation in search engines needs renewing with
open working and open indexes

Image: LA at Night, Wikimedia, https://upload.wikimedia.org/wikipedia/commons/7/75/LA_at_night.jpg 

Without being able to build on top of existing — search tools and indexes — innovation in search engines is being held back and letting down researchers and the public. The Open Access and Open Science movement that have worked hard to make free hundreds of thousands of publications, but at the last mile search engines are failing to effectively deliver on discovery. Public knowledge is hidden in plain sight — a phenomenon called “Dark Knowledge”. This article is a call for open infrastructural ‘ways of working’ to be adopted as ‘the new normal’ to turn this situation around in software and interface development for scholarly search.

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An Interview with de-RSE: Supporting Researchers Using Software

Image: de-RSE https://www.de-rse.org/de/index.html

de-RSE – Research Science Engineers: A New Association in Germany

An interview by GenR with members of the newly forming German association of Research Software Engineers – de-RSE. The association is being formally constituted in late November 2018 (next week 26th Nov., Berlin) and will provide a new support network for the wider software community. Highlights being a summer 2019 conference in Potsdam, and a fellowship programme. The interview is the first in a series of article in GenR’s theme ‘Socializing Infrastructures‘ and we take the opportunity to ask de-RSE for their comments on Open Science infrastructures and ‘software as infrastructure’.

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Socializing Infrastructures #infraQA

Questions about ‘how’ to transition to an Open Science future

A GenR Theme

Image: Google Maps glitch, Google Maps, Map data ©2018 Google, from the blog INTENSIVE PRODUCTION, https://conorintensiveproduction.wordpress.com/2015/05/09/real-glitches/

GenR has an editorial theme on questions of ‘Socializing Infrastructures’ for Open Science. The theme will run over November and December 2018, with blogposts, visualizations, and conversations.

Join us on Twitter @gen_r_ and tweet your own Open Science infrastructure questions with the hashtag #infraQA

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